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I will be updating this page as and when I get more information about this conference.
I would like everybody to know about the conference on rare medical disorders, such as Phenylketonuria, Homocystinuria, etc. These conditions are due to the absence of an enzyme. Everyone with this condition should be on a re stricted special diet. We will be having a conference on Saturday, October 11, 2003. We will have various speakers from US and also Dublin, Ireland, cooking demos and other fun stuff. We have lots of goodies to taste, people to meet, new friends to make and take part in Silent Auction. The fun list goes on and on. Please come and attend the conference on this day. There is also a Family Picnic day on Sunday October 12, 2003. DIRECTIONS TO THE CONFERENCE FROM: LAX airport TO:
CHLA, 4650 W Sunset Blvd 1. Start out going East on WORLD WAY/ CENTER WAY. -0.04 MILES 2. Take the CA-1 S/ SEPULVEDA BLVD SOUTH ramp toward I-105.- 0.06 MILES 3. Keep LEFT at the fork in the ramp. - 0.02 MILES 4.Stay straight to go onto ramp. - 0.04 MILES 5.Merge onto S SEPULVEDA BLVD/ CA-1 S. - 0.61 MILES 6. Take the I-105 E/ IMPERIAL HWY WEST ramp toward IMPERIAL TERMINAL. - 0.14 MILES 7. Merge onto I-105 E toward NORWALK. - 6.54 MILES 8. Merge onto I-110 N toward LOS ANGELES. - 8.18 MILES 9. I-110 N becomes CA-110 N. - 1.97 MILES 10. Merge onto US-101 N toward HOLLYWOOD. -2.95 MILES 11. Take the VERMONT AVE exit. - 0.17 MILES 12. Turn RIGHT onto N VERMONT AVE. - 1.21 MILES 13. Turn RIGHT onto W SUNSET BLVD. - 0.06 MILES TOTAL DISTANCE : 21.98 MILES. ESTIMATED TIME: 25 MINS
SCHEDULE 8:30 - 9:00 - Registration for all groups opens 9:00 - 9:15 - Conference Opening 9:15 - 10:15 - Dr. Yap from Ireland - recent news on PKU and HCU 10:15 - 10:30 - Morning Break 10:30 - 11:15 - Dr. Cunningham - Results of the NBS pilot program 11:15 - 12:00 - Dr. Cederbaum - How we get ENBS back 12:00 - 12:30 - New Product Showcase 12:30 - 1:30 - Lunch (note: parents are required to pick their kids up from childcare for lunch.Breakout Sessions - 1:30 - 2:30 - Cindy Ehnnes from the Department of Managed Health Care speaking on how to actually get your PKU food and formulas, and what to do when your insurance company doesn't payKathy Moseley, RD - speaking on Prekunil 2:30 - 3:30 - Dr. Koch speaking on Biopterin Malathy Ramanujam demonstrating her new baking products (that are really, really good!) *3:30 - 3:45 - Afternoon Break 3:45 - 4:45 - Small group discussions 4:45 - 5:00 - Closing: winners of Silent Auction, closing remark
* Tips on cooking Low protein meals and demonstrations by Malathy Ramanujam
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